Unraveling Cancer

SM and Skin: A Dermatologist Explains What’s Going On

In this episode of the Patient Power podcast, Unraveling Cancer, Patient Power host, Ruth Fein and Lauren Madigan, MD, University of Utah, discuss a multi-disciplinary approach for diagnosis and treatment of systemic mastocytosis, the role of dermatology in identifying and managing skin-related symptoms, and what is in the pipeline for new therapies in the future.

The Importance of Preventative Care and a Supportive Healthcare Team

In this episode of Unraveling Cancer, Patient Power host, Michelle Nadine-Baker, is joined byKerry A. Rogers, MD, The Ohio State University Comprehensive Cancer Center – The James, to explore the importance of building a comprehensive healthcare team, scheduling regular screenings, and ensuring you and your support network are equipped for the journey ahead.

Living Well With Indolent Systemic Mastocytosis

In this episode of the Patient Power podcast Unraveling Cancer, we explore indolent systemic mastocytosis. Patient Power host Ruth Fein is joined by John Fahrenholz, MD, Vanderbilt University Medical Center, to discuss diagnosis, emerging treatments like avapritinib, and the importance of patient advocacy and collaboration between specialists.

What to Eat While Being Treated for CLL

In this episode of Unraveling Cancer, Patient Power host and chronic lymphocytic leukemia (CLL) patient advocate Michele Nadeem-Baker is joined by Julie Lanford, MPH, RD, SCO, the Cancer Dietician. Julie explains the top three most important things to eat daily, why nothing is off limits, and advises care partners on the best ways to support a loved one’s nutritional goals.
Resources discussed during the program:www.cancerdietitian.comwww.AICR.orgwww.cookforyourlife.org

How Can CLL Patients Help Researchers Find a Cure?

In this episode of Unraveling Cancer, come meet the chronic lymphocytic leukemia (CLL) detective team at the UCSD Center for Novel Therapeutics. Thomas Kipps, MD, PhD, opens the door to the lab and introduces Patient Power co-founder and host, Andrew Schorr, to two members of his team: Emanuela Ghia, PhD, and Daniel Elson. Together, they explain current CLL research, where they believe they are headed, how close we may be to a cure, and the important role played by people with CLL around the world.

Addressing Challenging Thoughts During Cancer

“It’s not the thoughts, it’s what you do with those thoughts” In this episode of the PatientPower podcast, Unraveling Cancer, Patient Power host, Michelle Nadine-Baker, and Dr. RachelGoldman, Clinical Assistant Professor, Department of Psychiatry, NYU Grossman School ofMedicine explore common mental health struggles experienced by cancer patients, address theissue of body image during cancer treatment, and the importance of seeking professional help.

Confessions of a Clinical Trial Junkie

“Smart Patients get Smart Care” Brian Koffman, MD, Chief Medical Officer andExecutive Vice President of The CLL Society, joins Patient Power co-founder, AndrewSchorr to advocate for clinical trials.
 
For more on on CLL, visit us on Patient Power,
https://www.patientpower.info/chronic-lymphocytic-leukemia

How Patients With SM "Are Their Own Quarterback"

In this episode of the Patient Power podcast, Unraveling Cancer, Patient Power host, ZachBerkowitz is joined by Dr. Aaron Gerds, Cleveland Clinic, to discuss the difficulties patients facecoordinating care between health care providers, the importance of advocating for oneself andthe exciting approvals of new treatments for systemic mastocytosis.